This Year, Give the Gift of ViaQuest

It’s never easy to come to terms with having a parent or loved one with an advanced illness, especially during the holiday season. It may be hard to feel festive and merry when a loved one is approaching end-of-life. You and your loved one’s doctor may have even discussed hospice care, but maybe you’re consciously postponing that hard conversation until after the holidays. We just want to let Mom enjoy the holidays without the weight of thinking about hospice on her mind…We don’t want to make things awkward when the family visits.

 As a caregiver and decision maker, it’s important to know when the right time for hospice is. And even though it may not seem like it, before and during the holidays can be a good time. Putting your loved one in hospice during the holidays can provide an additional layer of comfort, care, and support for both the patient and family. It allows some of the weight to be lifted off the family caregivers so you can cherish the holiday season with your loved one.

ViaQuest Hospice provides an extra layer of support that enables family members to resume their role of wife, mother, daughter, husband or son by our ability to ‘share the care’, even during the holiday season. Our team will work with your loved one’s physician to create a personalized and comprehensive care plan that focuses on pain, symptom management and patient comfort, allowing them to fully enjoy the holiday season. ViaQuest Hospice also offers a specialized team of physicians, nurses, and volunteers that are available 24/7 to take the burden off of family caregivers.

The holidays are a time for family, togetherness, and hope, and ViaQuest Hospice can provide all the resources necessary to make your loved one feel hopeful, comfortable, and surrounded by the people they love. It is important to realize that hospice is focused on improving quality of life and allowing time to be spent more joyfully with those you love. So, instead of avoiding the hospice conversation, consider giving the gift of ViaQuest this holiday season.

After all, there’s no place like home for the holidays.

For more information on ViaQuest Hospice, call our compassionate team at 855-289-1722.

Hospice for Alzheimer’s Patients

hospice alzheimers

When is it time to look into hospice care for a loved one with Alzheimer’s?

Different from other terminal diseases, Alzheimer’s disease is defined by uncertainty. It should be no surprise, then, that figuring out when and how to seek additional help for a loved one with Alzheimer’s is a difficult task.

Many people don’t realize that hospice is an option for the care and comfort of individuals with Alzheimer’s – and many more don’t realize it’s an option until their loved one’s disease progresses to late stages. Hospice care may be more closely associated with diseases such as cancer and heart or lung disease in our culture, but it’s appropriate for anyone with a terminal diagnosis. And make no mistake: Alzheimer’s is a terminal disease, even if it’s extremely tough for medical professionals to gauge how long a person who has it might live.

That raises a question, though: If a loved one has Alzheimer’s or dementia, when is it time to look into hospice?

Reading the Signs & Symptoms

One of the measurement systems often used by hospice services is the Reisberg Functional Assessment Staging (FAST) scale, which tracks the progression of dementia through 16 items across seven stages. Among the symptoms that appear on the scale are:

  • Inability to walk, dress, bathe or use the bathroom without assistance
  • Incontinence
  • Difficulty speaking more than a few intelligible words

Associated Conditions

Hospice programs also keep track of patient comorbidities to determine eligibility. Some of the comorbidities most often associated with Alzheimer’s disease are:

  • Aspiration pneumonia
  • Pyelonephritis (kidney infection)
  • Urinary tract infection
  • Sepsis (blood poisoning, sometimes called septicemia)
  • Bedsores (sometimes referred to as pressure ulcers or decubitus ulcers)
  • Fever after use of antibiotics
  • Inability to maintain fluids or caloric intake to sustain life

Additional Difficulties Faced by Patients

Other possible signs of Alzheimer’s – or worsening of Alzheimer’s – include eating challenges. These may include:

  • Difficulty swallowing
  • Difficulty coughing up fluid from the lungs
  • Refusal to eat or drink, or forgetting to eat or drink
  • Malnutrition

Beyond that, it can be helpful to compare the person’s behavior to their behavior earlier in life. You may notice frequently elevated levels of stress and anxiety, difficulty sleeping or disruptive behavior. Possible indicators of worsening condition include falls, uncontrolled pain, psychosocial issues and hypotension.

Getting the Process Started

Hospice care is generally defined as comfort-focused treatment for terminally ill patients with less than six months to live. But life expectancy for patients with Alzheimer’s – as well as similar dementing conditions, including frontotemporal dementia, Lewy Body dementia and vascular dementia – is very difficult to pinpoint. Making Alzheimer’s hospice criteria even more complicated, the disease impairs the patient’s ability to express themself, so they may not be able to adequately communicate regarding pain, discomfort and needs.

With anything regarding Alzheimer’s, the earlier a matter can be addressed, the better. It’s unfortunately common for people to not intervene in a loved one’s cognitive decline until very late, but it’s never too early to start formulating a plan.

Hospice Consults

Scheduling a hospice consult – in conjunction, if possible, with their primary care doctor – can help provide a clearer idea of what care a loved one may need and when it might make sense to begin hospice services. Beyond that, it’s a good idea to talk about your loved one’s wishes while they can more easily express them, including which medical treatments they do and don’t want, and also fill out legal documents while they can better answer questions.

If your loved one uses Medicare, make sure any hospice program you’re exploring is Medicare-certified.

Why Choose Hospice Care for Alzheimer’s Disease?

There may be no known cure for Alzheimer’s, but hospice care can make the life of the patient decidedly more comfortably – in fact, Alzheimer’s patients who are in hospice care often live longer than patients who aren’t. A quality hospice program for Alzheimer’s will include medical care, end-of-life counseling, respite care for caregivers and grief support, among other things.

A person with Alzheimer’s disease is also likely to spend less time in the hospital while receiving hospice care – a definite positive, as frequent hospitalization can lead to delirium for Alzheimer’s patients. Dehydration, UTIs and aspiration pneumonia are more common in individuals with Alzheimer’s and are more likely to lead to hospitalization.

Hospitalization may be able to resolve individual issues, but the patient’s not going to get any better, and if those issues can be resolved at home or in a hospice care facility, so much the better. As an added benefit, hospice care makes it easier for family members to keep apprised of their loved one’s condition, and easier for medical professionals to spot and deal with infections.

Find Out More About Hospice Care

If you have a loved one with Alzheimer’s disease and are wondering if hospice care is a good option, reach out to us today at ViaQuest. Our expansive hospice program tailors care to each patient, including those with Alzheimer’s or dementia. Take our hospice quiz or contact us today to learn more about eligibility.

New Year’s Resolutions for Caregivers

A new year is a chance for a new start and a fresh beginning. A chance to take inventory of your life and better yourself in all areas possible. While some people’s New Year’s Resolutions are to lose weight or quit smoking, others’ are simply to not forget a prescription, or to not feel guilty about taking the day off.

It can be easy to get overwhelmed by the demands of caregiving, and this can lead to stress, exhaustion, and burnout. The weight of caregiving can easily provoke thoughts of imperfection and self-criticism, but it’s important to remind yourself that you’re doing the best you can, while making a true difference in a loved one’s life.

So, at the beginning of another new year, we’ve created a list of New Year’s Resolutions for caregivers that are realistic to keep throughout the entire year. Print these out, remind yourself daily, or choose one every month to stick to, but remember that any progress is good progress, and you are never alone.

Realistic New Year’s Resolutions for Caregivers

  1. Find time to take care of yourself. You owe it to yourself and your care receiver to carve time out specifically for you.
  2. Don’t feel guilty about taking time for yourself. Taking a break will allow you to come back feeling recharged and more focused, ultimately making you a better caregiver.
  3. Don’t fall behind on your own health exams and yearly appointments. When you’re so focused on making sure your loved one makes their appointments, it can be easy to neglect your own annual health screenings and dental exams. Schedule your yearly appointments in January and set a reminder.
  4. Consider joining a caregiver support group. This is a great way to talk with people going through the same experiences as you. If you can’t find time to leave the house, there are many online groups available.
  5. Organize all your loved one’s medical papers. Get together a folder with all medical information, a health care proxy, and an Advanced Directive.
  6. Don’t be afraid to delegate tasks. Ask friends and family to help run errands, do chores, or aid in short-term respite care. You may feel reluctant to accept help, but chances are, close friends will be more than willing to.
  7. Remind yourself that your loved one did not choose their illness or disability, and no one is to blame to stress or frustration.
  8. Remind yourself that you are imperfect, you will make mistakes, and there is no need to feel guilty about it. You’re doing the best you can.

One final thing to remind yourself of this new year is that you do not have to handle this alone. ViaQuest Home Health and ViaQuest Hospice support family caregivers by adding an extra layer of support and ensuring the wellbeing of both the caregiver and the patient. If you’re interested in how ViaQuest can help, call 855-289-1722 for support, answers, and real help.

National Hospice and Palliative Care Month

November is National Hospice and Palliative Care Month. ViaQuest recognizes hospice care as a service that provides comfort, dignity, and respect to those coping with a serious or life-limiting illness and their families. While we realize the subject of hospice is often fraught with both emotion and confusion, we feel that this often-misunderstood facet of care is a valuable option that many families don’t explore because of the misconceptions surrounding it. Hospice is about allowing patients with life-limiting illnesses to navigate their end-of-life journey with dignity and compassionate care and supporting their families and caregivers.

The National Hospice and Palliative Care Organization shares some history about hospice care, noting that the first modern hospice, St. Christopher’s Hospice, was created in suburban London by physician Dame Cicely Saunders. Saunders began working with terminally ill patients in 1948 and coined the term “hospice” to describe specialized care provided for dying patients. In 1963, while serving as a guest lecturer at Yale University, Dame Saunders introduced the concept of hospice care to medical students, nurses, social workers, and chaplains. Pointing to photographic evidence of terminal patients with their families, she showed the dramatic improvement brought about by providing symptom control care. Hospice care as we know it today is a direct result of this lecture.

Six important points to know about hospice from NHPCO:

  1. Hospice care is usually provided in the home – wherever the patient calls home. This includes assisted living communities and other long-term-care settings.
  2. Hospice cares for people with any kind of life-limiting illness. Patients of every age and religion can access hospice care.
  3. Hospice is fully covered by Medicare, Medicaid, and most private health plans and HMOs.
  4. Hospice is not limited to six months of care. Patients and families are encouraged to contact a hospice provider when they receive a terminal diagnosis instead of waiting until the “last days” to benefit from all that hospice care has to offer. Pain management and symptom control offer significant physical benefits for patients as well as increased quality of life.
  5. Hospice is not “giving up”; rather the focus is on caring, not curing. Hospice organizations are also trained to help family members cope with the emotional aspects of caring for a terminally ill loved one, as well as the grieving process when that loved one passes.
  6. Anyone can contact hospice – so call your local program to learn if hospice is right for you or your loved one. Each hospice provider in an area may do things slightly differently, so choose an organization based on your needs. Many hospitals and skilled care facilities can offer suggestions or information on hospice care.

Choosing hospice does not mean you’re giving up hope—it just means a different kind of hope. A hope that your loved one can choose how to spend their final months, a hope that they will live as well as they can for as long as they can, and be surrounded by people who love them. ViaQuest Hospice can provide you with tools and support to make the decision and transition simple, peaceful, and full of hope.

If you have questions about hospice care, need support dealing with an illness, or feel it is time to focus on quality of life, call us at (855) 289-1722. We have a team of caring professionals on-call, ready to help.

Making Memories

What My Hospice means is different to each individual and family we serve. For Carl, it meant sharing Christmas with his family and giving them gifts, and his hospice team at ViaQuest made that possible.

Carl Snowberger’s favorite thing to do every year at Christmas was to be Santa and give individualized gifts to his family. Our hospice team helped him fulfill his wish to continue this important family tradition one last time.

Carl was able to sign a card for each individual gift, and the hospice team laminated each card to create keepsakes for the family. He also received a photo frame that the family signed, which they will use for their Christmas family photo.

Family pictures were taken, followed by pizza from Arnis, his favorite restaurant. The day also included a reading of the Christmas story by ViaQuest’s Chaplain, gift opening, cookies and hot cocoa with Santa, Christmas music, laughter, and stories. Bereavement coordinator, Tammy, was able to meet and mingle with family to establish a trusting relationship for the future.

Rosewalk Village of Lafayette allowed ViaQuest to use their club room to host this event, working well with the hospice team to ensure that Carl received the best care possible.

“I want to thank each and every one of you who helped make this event possible, even those who participated behind the scenes,” said Ashley Garrett, Branch Director at ViaQuest Hospice. “We work for such a giving company who finds as much passion and significance in these moments. This was a beautiful experience and makes me proud to be ViaQuest strong!”

Written by: NHPCO, My Hospice campaign

Getting a Passing Grade

congestive heart failure treatment

Knowledge to More Effectively Manage Congestive Heart Failure

For patients with heart problems, being released from the hospital is often just the beginning.

Statistics show that approximately 20% of heart patients are readmitted to the hospital within a month. That means many patients simply aren’t prepared to deal with the new realities of their issues, and need information and support if they’re to avoid a prompt return to the hospital or the emergency room. Readmission rates are so high that the Centers for Medicare and Medicaid Services developed financial reforms to deal with their economic impact.

American Heart Month in February is a time to show awareness for those at risk of falling victim to what was, pre-COVID, the No. 1 cause of death in the U.S. But for those who suffer from congestive heart failure, as with all other heart ailments, that awareness needs to continue year-round – those afflicted won’t be getting a break in March.

What is Congestive Heart Failure?

Congestive heart failure is a chronic condition that impairs the heart’s ability to pump blood. Fluid buildup around the heart reduces its ability to pump efficiently, forcing it to expend more energy and send less oxygen-rich blood to the rest of the body. To compensate for these problems, the heart may become enlarged and begin pumping faster to get blood to the rest of the body. In addition, blood vessels narrow, and blood is diverted from the brain to other parts of the body.

The Symptoms of CHF

Symptoms of congestive heart failure include, but are not limited to:

  • Shortness of breath, also known as dyspnea, particularly when lying down
  • Fluid buildup, also known as edema
  • Sleeplessness
  • Chest pain
  • Dizziness
  • Confusion
  • Difficulty concentrating
  • Increased stress
  • Water retention, resulting in swelling and/or weight gain
  • Swelling
  • Bloated or upset stomach
  • Loss of appetite
  • Dry, hacking cough
  • Rapid or irregular heartbeat, known as heart palpitations

Additional Struggles for Patients

Patients who deal with the effects of congestive heart failure on a daily basis also tend to encounter secondary symptoms, such as anxiety and depression. They’re more sensitive to extreme weather – the increased blood flow and sweating associated with warm weather give the heart more work today, while the breathing difficulties brought on by cold weather put their own strain on the heart – and may have difficulty with tasks that were once easy, from climbing stairs to carrying groceries.

Managing the Disease

Because of the body’s defense mechanisms, it may take a person a long time to notice the symptoms of congestive heart failure, and even longer to do anything about them. For many people, these symptoms are easy to pass off as minor inconveniences for quite some time. This can even continue after a patient has been hospitalized – increasing the risk of readmission, as the patient doesn’t notice the symptoms quickly enough or doesn’t know how to deal with them.

Finding the Right Approach

As widespread as heart disease is, no two people who suffer from this disease face the same challenges. Congestive heart failure treatment and management requires specialized care tailored to the individual – there is no one size to fit all.

The Basis of a Plan

Though congestive heart failure has no cure, a well-thought-out medication regimen and smart lifestyle changes can make it much easier to handle on a day-to-day basis. An effective treatment plan will focus on more than just managing crises. It must also have a heavy emphasis on prevention.

Putting a Treatment Plan into Action

The best path to improved outcomes with congestive heart failure is an individualized treatment plan. This type of treatment helps to manage symptoms, avoid serious complications and keep the patient out of the hospital.

Individualizing Care

At ViaQuest, we customize care for all of our patients, meaning every single one has a plan that meets their specific needs. Plans are devised based on conditions, symptoms, time of year and more. We offer access to all of the professionals on our care teams, from CNAs to our medical director, and our nursing staff is available 24/7. We also work with Medicare, Medicaid and most private insurance providers to ensure our services are affordable, if not outright free of charge.

Understanding Day-to-Day Health

We’ll set up free at-home assessments, monitoring and support, so our patients and their loved ones are always kept apprised of the patient’s health. And in addition to the care we provide directly, we also offer treatment algorithms and educational materials so you know how to handle your health on your own time.

Through these measures, we can help prevent readmission in patients with congestive heart failure. ViaQuest Hospice helps keep patients out of the hospital by bringing all the hospital services directly to them.

Find Out More

To learn more about the care options available to you or to a loved one with congestive heart failure, get in touch with us at ViaQuest today.

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